VIN (Vulval Intraepithelial Neoplasia – HSIL)

Official international awareness ribbon

If you are living with VIN, welcome to this page.  You are living with one of the most neglected areas of female health in the world.  Information is limited.  Medics say they are still learning about it and how best to help.  This page would like to offer you some of the information that is available.  In the UK, medics still insist on calling this condition VIN but the ISSVD re-classified the description in 2015 read more here.

Join an online Facebook support  group hosted by ALSVH  - you will need to be diagnosed with VIN or vulval cancer to join this group

http://lichensclerosus.org/wp-content/uploads/2019/07/pdfDifferentiated-VIN-and-lichen-sclerosus.pdf

https://www.acog.org/Clinical-Guidance-and-Publications/Committee-Opinions/Committee-on-Gynecologic-Practice/Management-of-Vulvar-Intraepithelial-Neoplasia?IsMobileSet=false

https://www.news-medical.net/health/Vulval-Intraepithelial-Neoplasia-Treatment-and-Outcomes.aspx?fbclid=IwAR1j-IRWFEZQr8-KVbR_62XHoJBsX0_eQtB0UC5Yb6GY-esrqkKAvLFMSHQ

https://patient.info/cancer/gynaecological-cancer/vulval-intraepithelial-neoplasia?fbclid=IwAR2E4tHsgGQpIYbwFTZ6cR_8QFMVQW-IUEShD3g3zLlFPCFSnYEQR8TXbV0

https://www.cancerresearchuk.org/about-cancer/vulval-cancer/stages-types-grades/vulval-intraepithelial-neoplasia

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5145003/

https://www.ncbi.nlm.nih.gov/pubmed/16319258/

From 1983 but may still be relevant. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2722221/