Support Groups

Lichen sclerosus is a condition that can make you feel very alone and isolated. Below are links to various groups you can join. 28 years of experience running this non-profit has shown that support in local communities can be of benefit. If you would like to start a local meeting or online group in your location, we can help you to set up a group in your area. If this is something you would like to do, please get in touch via the contact link.  See the list below for details of some existing ways of making getting to know and meeting others.

Zoom Video Room for women with Lichen Sclerosus, one to one sessions, with Fabia or group meetings. For more information please email using the contact link.

New Zoom Video Room for men with Lichen Sclerosus, one to one sessions with our founder, Fabia, or small groups will be available soon. For more information please email using the contact link.

Facebook pages for Lichen Sclerosus that are administered by ALSVH

Lichen Sclerosus Ireland and Northern Ireland

Lichen Sclerosus New York City and New York State

Lichen Sclerosus Canada

World Lichen Sclerosus Day January 17

Other online groups

Lichen Sclerosus in men

Caring is Sharing about Lichen Sclerosus

Lichen sclerosus UK Natural Support

Meeting communities in the UK

UPCOMING EVENTS (will not run during the Corona Virus Pandemic, please contact organiser for further information)
Please follow the link for further information.

The London Vulval Pain Support Group also welcomes those diagnosed with lichen sclerosus. Face to face meetings in London.
Read more.

Meeting communities in the USA

Arranges face to face meetings. Sharing local information. Welcomes those who can travel to Cincinnati.

Try a Google search to find other online groups.