Lichen Sclerosus and pregnancy

Here at Admin, there are often enquiries from women who are pregnant and they all ask the same questions.  This page has been designed for you if you are pregnant for the first time or even the 2nd, 3rd and 4th time.  Yes, women do have babies very successfully despite the diagnosis of LS.

At WLSS a trend is being noticed for some gynaecologists and dermatologists to allow the use of strong steroids during pregnancy but even though one UK hospital did a small study about this subject, there seems to be no evidence of it in the public domain.

It is the hope of this site, that if you are pregnant and you deliver happily and successfully and here it is known about that many women do have good births even with quite severe LS, that you will come back and share your stories of success and in doing that, you will be offering a gift to every woman who visits this site.  Thank you.

adminLichen Sclerosus and pregnancy

Comments 30

  1. Sarah

    Hello! I discovered that I had LS about 4 years ago. I self diagnosed using the internet after ruling out a yeast infection and STDs. My gyn concurred that it was indeed LS and gave me some creams – one stronger and one milder for when the symptoms calmed down. Using the creams definitely kept symptoms at bay. I stopped using the strong cream after about a month and have continued with the milder cream ever since. I delivered my first baby five months ago. I had no issues with LS during pregnancy, or during labour – no tearing. It is only now that I am having sex again with condoms that the symptoms have come back. I am back on the creams and hope that the symptoms calm down. I also think that the symptoms came back because I was getting lax with applying the cream because I had no signs of LS. Fingers crossed I can manage it again!

    1. ali

      Hi Sarah~Can you tell me the two creams that your doctor prescribed to you? I use clobetasol (potent) and would like to get a milder cream during pregnancy. LS has been flaring up since I got pregnant…
      Thanks!

  2. Jennifer

    Hi All,

    I had LS flares every month with my last pregnancy. They were more mild than non pregnant flares but still very uncomfortable. My OB allowed me to continue with clob throughout pregnancy so it was somewhat manageable. I did have a flare when I gave birth. I was induced for medical reasons. I have very fast labors and was given an epidural to try to slow down labor and delivery for my own comfort and to try to prevent damage. My labor was a little less than an hour and pushing was about ten minutes which allowed my doctor to massage and strech my tissue as well as use oil and manipulation of baby. I had very minimal pain and not a tear or anything I was up and walking around 30 minutes after birth. I would love to have another baby in a year or two and although LS is not great during pregnancy and labor it is manageable and will not detoure me from furthering my family. I hope this helps other women out there. Thanks

    1. Post
      Author
      admin

      Jennifer, thank you so much for your helpful message. Pregnancy is an area of having LS that attracts a lot of anxiety and a lot of questions that seem to be hard to find answers for. It is really helpful to know that you were able to use steroids throughout your pregnancy and that you recovered well after the birth. Hope you will keep us posted on any future pregnancies, your information is really valuable.

  3. Robin

    Hi ladies,

    I had a very different experience with LS and pregnancy. My LS was discovered during pregnancy even though I had been experiencing perineal tearing during intercourse for years. I was officially diagnosed after my birth (emergency c section after 23 hours labour) and seeing a vulvar specialist. I sometimes feel like it was meant to be that labour didn’t progress for me. I was diagnosed with a severe case at 27 just after the birth. Two years later I was preg again and no real improvement in LS despite vaginal surgery to remove perineal scar tissue and open up clitoral area. My OB was very concerned about a vaginal delivery and I was scheduled for a second c section. I hope u can deliver vaginally if that’s your goal, I wish I could have. U dont want to bring u down, but I feel it’s also important to talk about the other possibility, which is, in some cases vaginal delivery could be far more damaging in the long term. This is a very personal and individual decision. Good luck to you :)

  4. Sarah

    Hi! I had a flare up throughout my last pregnancy and was advised (hugely against my wishes) to have a C-section. I did imagine I might tear badly (due to not being stretchy ..) and was very worried about healing afterwards – has anyone had problems with this ? I did have a C-section in the end as my baby was also breech.
    Also – someone mentioned the Epi-No – an inflatable ball used inside, that helps stretch and prepare your body for birth which I’m keen to try as I really really want to give birth naturally next time. Has anyone tried this or thought about it? http://www.epi-no.co.uk/default.asp

    Thanks!

  5. Andrea

    Not diagnosed with LS yet, but I’m sure I will be. Everything fits what’s been going on with me for a year.
    Severe itching for the past year – been treated for numerous “yeast infections” even though I told them that’s not what it is – there has never been discharge. Took months to get in with the best GYN in town – finally saw her in March. She said it’s not YI – but rather low estrogen, but she never drew levels or anything, just prescribed the cream – which didn’t help. I thought maybe the mirena was messing with my cycles. Took that out in May. Got pregnant (on purpose) in July. Thought if it was low estrogen, that would fix it since estrogen levels rise in pregnancy! … but here I sit at 11 weeks pregnant and it’s still terribly itchy – and since getting pregnant – the new symptom of thin tearing bleeding skin has started. One NP at the midwife office told me to just use the estrogen cream (even though it’s category X for pregnancy!) NO THANKS! Waited through till my appointment yesterday with a midwife – and I literally broke down in tears talking to her about my frustration that this has gone on for a year with no answers. It’s not at a terrible flare up now (They hit about ever 3 weeks, but it remains at a dull roar in between – never fullly goes away). She wants to see me when it’s flared up – so I’m supposed to call. Went to the net after leaving there and stumbled upon this LS information. Took a close look with a mirror – and what do you know – white patch all along one side of my labia. Of course, it was Friday evening – so I have to wait until Monday to call. I’m going to insist on a biopsy to make sure this is what it is, but it all lines up. Sad that Dr. Google could diagnose me before the doctors.

    Really worried about what can be done during the next 6 months of pregnancy – and getting more worried about what this may mean for a vaginal delivery. This is baby #3 for us. I’ve had 2 natural/no drugs/vaginal deliveries so far. I’m actually wondering if the trauma (tearing up into the clitoral region) might be what caused this LS…

    ~sigh~

    1. Post
      Author
      admin

      Welcome Andrea. There are always concerns with pregnancy. However, a recent conversation with a UK gynaecologist reveals that some doctors will allow treatment with steroids for a short period of time. As far as I know, there is no evidence to support or deny the use of treatment while pregnant and itch can also be helped by moisturising with creams or oils. You will need to have a conversation with your OB/Gyn. In the meantime, do please consider becoming one of our patrons by sharing your journey and story. WLSS wishes to encourage follow up messages, because, as you will appreciate, if you are searching for comforting and helpful stories on a website like this, it is so very rewarding to find that a kind hearted person has come back to share good news. Hope to hear from you.

  6. ashley

    I am about to have my 3rd baby any day now and am really concerned about a vaginal delivery, though still planning on it. I was diagnosed with LS 2 weeks before I found out I was pregnant. My doctor has had me use a steroid cream the entire time because my case was so bad even though I’m only 28. By the time a doctor finally diagnosed me I was super itchy, all the skin was white, and my inner labia have atrophied almost completely. All of my symptoms have improved drastically since using the cream, but the skin is still very tight and doesn’t stretch like it should. I had LS with at least my 2nd baby and tore horribly. I had tears in all 4 directions and the healing process was slow because I developed granulation tissue. Dr. says this time should be better since the LS is being treated but I’m still wondering if I should opt for a C section.

  7. sadie

    I wanted to come back to this site after consulting it many times over the course of my pregnancy. Thought I would share a happy ending.

    I’m 38. I was diagnosed with lichen sclerosus three or four years ago and have used clobetasol fairly regularly ever since. The clob helps the itching and white patches. A little under a year ago I had a dark blue spot that scared me beyond repair (having read too much on the internet) but a biopsy later confirmed it was just a blue patch of LS. Clob to the rescue.

    After struggling to get pregnant and several IVF cycles that failed, we finally achieved a pregnancy with all signs of good health. I’m now almost 17 weeks. I stopped the clobetasol with the embryo transfer, and within a few weeks, I noticed the itching and patchy skin returned. It intensified so much over the next few weeks that I cried almost every night from the agony. Any kind of intimacy with my husband was out of the question — and by this point, had been for months, which is not the ideal way to spend a pregnancy. I kept myself clean, tried non-steroid lotions, anything I could find with online support, but I could not stem the itching or the pain. I would wake myself up at night with scratches from dealing with the itching in my sleep. My GYN had told me not to use the clobetasol during pregnancy, but this was getting so out of hand that I went back to her to ask what I could do. I couldn’t function this way another five months. She had never had a pregnant patient with LS, and since she did not practice OB anymore, I had to go to my new OB to discuss. He was very responsive, but even after 30 years of practice, he too had never had a pregnant patient with LS. Well, I was about out of my mind at this point. He did some research and made calls to various specialists, and finally he called and told me to use the clobetasol, especially since I was out of my first trimester.

    I was nervous, I won’t lie. After fighting this hard for a pregnancy, the last thing I wanted to do was compromise the health of the baby out of my own discomfort. I felt very conflicted. Somewhat selfish. But the stress of this, as my husband pointed out, also could not be good for the pregnancy, and I was otherwise taking such good care of myself. I couldn’t handle the discomfort — I truly cannot type just how awful it was.

    So, I used the tiniest amount of clobetasol at night. I. Was. Transformed. By the next day, the itching had dropped so considerably that I wanted to hug my OB. I used it two more nights, and not only was the itching completely gone, but the white scaly skin was much more pink and normal in appearance. I used it then for two nights more, every other night, and now I feel like I never had a problem.

    Three nights, plus two more with skipped nights in between, and I’m a changed mom-to-be. My stress has also plummeted by realizing that the clobetasol is still effective, so if I have flare ups during pregnancy and I can get it to a manageable place, then I know I can treat it more aggressively after the pregnancy to resume some sense of normalcy.

    All of this is to say, hang in there ladies! Don’t be afraid of a dab of clobetasol if your doctor thinks it is okay. I am SO glad I went ahead and used it, as I am now so much more comfortable and happy, which can only translate well to the pregnancy.

    Forgive the long post. This is such a difficult condition to manage, especially when pregnant. I just wanted to encourage women in the same boat to seek even minimal treatment as it totally makes a difference. I’m so glad I did!

    1. Post
      Author
      admin

      Hello Sadie
      I am delighted to hear your news and very grateful to you for sharing it with us here, in the lichen sclerosus community. I feel it is so important to come back and let us know when things go well because it is very, very uplifting for others to read and to be inspired to work towards wellness in the way you have. I am very happy for you. Please come back and tell us when you have the baby.

  8. Crystal

    I have had LS since I was a teenager but it has gotten worse after my first pregnancy. I had flare up throughout both my pregnancies (particularly bad in the first couple weeks and the last couple weeks). My flare ups seems to be linked to hormones with me (at least that’s what I notice). Anyhow I used steriod creams very sparingly throught both my pregnancies and had 2 vaginal deliveries. With my first I was given an episitomy and healed good and with the second just had some natural tearing and healed even faster. Successful vaginal deliveries are possible with LS. I made to to soak on Epsom salt everyday and took arnica tablets with my second and within 2 weeks was completely healed ( although not symptom free) Good Luck to everyone and keep positive thoughts!!

  9. Hilary

    Hi everyone, I wondered if anyone could help. I had LS as a child from when I was a toddler up to my early teens. It was quite unheard of at the time – I had steroid creams etc and it actually cleared itself up during puberty. I’m still quite sensitive down there and have always found sex quite difficult, I assume because of the scar tissue. I’m now 16 weeks pregnant with my first baby. There’s not a lot of info out there about what happens when you’ve had scar tissue for your whole adult life and my midwife and consultant have no idea about it and are pressurising me to “just have a normal birth.” that would be my goal but I feel very uninformed and want to know if it’s medically likely that i would manage this without some quite serious damage. I’m 27. Has anyone else had a similar experience? I’m in the uk. Thank you!

    1. Mary

      Hi Hilary – we are not too far away from each other in pregnancy and I am also in the UK (due on 6th June, really wanting a vbac).

    2. Rachel

      Hi Hilary,
      Sorry I won’t be much help, just wanted to say I am in a very similar position. I was diagnosed as a young child & told I out grew LS. In my 20′s, just before falling pregnant I was rediagnosed. I had DD1 in Sept 2012 via c-section due to breech. I am currently 22 weeks pregnant with number 2 and starting to consider a natural birth. I feel confident that I can birth naturally with the right information, which is very hard to come by! I use a mild steroid, sporadically at the moment but plan to increase use to keep LS in check as I approach my delivery date. I plan to make decisions based on consults with my ob and ensure he monitors my LS.
      I wish you good health xx

  10. Sharon

    Has anyone ever dealt with LS while breastfeeding? I was just diagnosed this week (though I now think I’ve probably had it for years), and I am still breastfeeding my 8-month-old twins. On top of all the other fears and concerns that I now have, I am very nervous about treating myself with the clobetasol that my OB prescribed. It’s never been tested on breastfeeding women, from what I’ve been able to research, and my OB warned me to use as little as possible. Has anyone else used it while breastfeeding? Any advice would really be appreciated, thank you!

    1. M

      Hi Sharon

      I was diagnosed by biopsy when my second child was 6 months old. Although I have a mild case and probably had since my pre teens, the biopsy caused an uncontrollable flair up. My dr did not give me any cream and told me to wait to see the dermatologist, and didn’t give me any info on LS except to say it is surface only (I have since found a much better dr). Anyhow at the time I did not know LS had a hormone connection, and no one advised me not to breastfeed. So I breastfeed for an additional 3 years. Although I did have flair ups. I did use natural things to help, but for me changing my diet (almost eliminating sugar and wheat) and reducing stress levels (lots of help from a homeopath, osteopath, and acupuncturist) were key for me.

      As a doula who supports new moms, and families, I do believe strongly about the benefits of breastfeeding. And koodos to you for breastfeeding twins! However, I also feel strongly that moms are not encouraged to find a balance that works for their family. By now your twins are probably on solids, so this may not be as much of a concern for you now. But you could try pumping on days when you feel your system is free of the clob, and freeze the milk for use during periods when you need to use it. It would be helpful to know how long it stays in your system, and maybe your OB or pharmacist would know that.

      Best of luck!

  11. Alicia

    I have battled LS for years but went undiagnosed until pregnancy caused it to completely rage out of control. It wasn’t until after I had already conceived that I was diagnosed, and this sounds so unbelievably selfish and as a first time mom I can’t believe I’m even thinking it, but if I had known that this was going to be so difficult on me, I would have never tried to conceive. I know it’s probably just the depression from the LS talking, but as it is an autoimmune disease, unfortunately a third of them get worse and I’m in that category. Before pregnancy I had a small manageable amount of tearing and that was it. During pregnancy I have a full blown war situation happening. My doctor has been trying to get me in with an OB as he knows nothing about this, but problems have arised with the referrals. So now I wait.

    I have been on steroid creams, but I’m only allowed to take them for three to four days at a time. The nights without the medication are hell. I’m up all night in sheer pain and my skin peels when Iitch. My doctors have said I’m better off with a cesarean to avoid fourth degree tearing. And if my OB doesn’t agree then I will elect one. I would much rather have a planned blueprinted surgery than a reconstructive one followed by the possibility of incontinence.

    What have you ladies done for the depression? My husband is very understanding but we haven’t had sex in months. The nighttime trama makes me want to take a pair of scissors to my vulva! ( don’t worry I won’t)! It’s sometimes unbearable and I’m spending my nights crying as I lay awake for hours in pain. My hopes is that because it’s flared with pregnancy, postnatal it will go back down?

    1. Post
      Author
      admin

      When I started this group in 1997, pain was not a symptom associated with LS and many doctors still do not agree with this theory. If you have pain, then it may need an entirely different approach to treatment and you need to discuss this with a doctor who has good knowledge of vulva disorders. In the meantime, you may find the book ‘Healing Sexual Pain’ by Dr Deborah Coady helpful.http://www.amazon.com/Healing-Painful-Sex-Confronting-Diagnosing/dp/1580053637

      By the way, the internet is misinforming many that LS is an auto-immune disease, however, this is not yet proven and the current view is that it may be caused by more than one thing. The trick is not to worry about what may be causing the problem, the trick is to find a good doctor who will treat your distressing symptoms, so that you can enjoy your pregnancy and look forward to the arrival of the new baby with more joy. I am so sad that you have become low in mood for the lack of good care and support. I hope things will improve for you.

  12. Jen

    Hi all, just wanted to drop a quick note of thanks for all your stories – I’m 30 and was just recently diagnosed with LS… just as my husband of 1 year and I were starting to think we would like to start trying for a baby. Ever since this started I’ve been very nervous to learn whether LS or the treatment would make pregnancy more difficult, and I’m so very comforted to hear from other ladies who have the same condition and were able to have pregnancies with fairly minimal problems. Thank you!

  13. lauras

    Hi all,

    I’m 28 years old from the uk! I’ve been diagnosed with LS now for about 2 years but I’ve had problems for about 4!! ( it took 18 months to get a diagnosis!) As a result of being left untreated for such a long time I have scarring and fused skin! I had managed to control it last year and got discharged from the dermatologist who has been amazing! But unfortunately after a few months it came back and I’m still trying to control it! I have found that problems with my bowel and being constipated (great!!!) seems to affect my skin and I’m currently trying to sort that problem out in the hope that this will then calm my skin down!

    Anyway I’m getting married in the summer and we are then hoping to start trying for a baby…. However I’m petrified!! I really want to try and have a normal delivery with minimal pain relief but I’m so scared I’m going to tear from one end to the other! I’m not even pregnant yet! I saw a gynaecologist a while ago who said the best thing I could do would be to get pregnant and that I’m no more at risk then any other woman giving birth of tearing!! But the more I think about it the more scared I get!! She said I needed to try and have at least one normal delivery to avoid problems in later life and its what I would want anyway! The thing that scares me is using these steroid creams and that they thin your skin so what on earth will happen when I give birth!! I’m trying to just use Vaseline at the moment to keep things moisturised but I’ve had to give in to steroid cream tonight because I’m just too sore, itchy and my skin is bleeding and splitting at the moment!

    Anyway just wondered what people’s thoughts are and anyone that’s had a normal delivery how they found it etc. None of my friends can put my mind at rest even though they have had babies because I feel that they don’t realise quite how bad my skin is and how scared I am!

    Thanks all xxx

  14. Mary

    I had a c-section for my last baby 3.5 years ago as I was too scared to try natural birth and my LS really flared up during pregnancy.
    For about the last year I been in a really good ‘remission’ where I hardly notice the condition and hardly use any creams.
    I am 23 weeks pregnant and keep fantasising about natural birth this time around. Is it a fantasy? feel like my local doctors/consultants and midwives in the UK don’t have a clue about my condition. One doc I met years ago who knew a lot has retired now.
    I don’t know what to do. Will I always be sad about not having a natural birth?

  15. Rf

    I was dx with ls when I was 20 (8 years ago). It seems manageable most the time with a small dab of steroids every few weeks or months. In the last 2 weeks it had been unbearable even with steroids and has got me wondering if it might be an early pregnancy sign because I’ve been able to notice changes with hormones and normal cycles. I had one pregnancy that ended in miscarriage that had ls flare similar to now. In my research I found this forum and just thought I’d share that my last pregnancy (1st birth) I delivered vaginally with no tearing. And I didn’t use steroids almost the entire pregnancy.

  16. L.M.

    Hi all,

    I am 22, was recently diagnosed with LS as well as Lichen Planus and need to be biopsied in May for vulvar cancer. Like a few other women here it was suggested I may have a skin condition during a colposcopy (my fourth)… I have been closely followed for cervical cancer since I was 19. It took me almost a year to see a vulvar specialist and I was diagnosed with LS and LP, and I now have almost no inner labia as a result of the progression of my LS.

    With these two skin conditions and two potential cancer issues in my reproductive anatomy, I am VERY scared about my ability to get pregnant and carry healthy babies to term. I am getting married next year and have felt for some time that my “mommy clock” is ticking faster than most other women’s. I am just so freaked out about not being able to conceive or stay pregnant. Can anyone point me to some resources about LS and fertility? Or maybe send some e-hugs?

  17. Lincy

    Hello!
    I am 22 and I was diagnosed with LS when I was about 2 years old. I have had it my whole life and hate it because I have to explain to people why it hurts to have sex and why I can’t have sex for long periods of time. Well any way I had LS really bad as a child, toilet paper tore me and I would get blood blisters and sores all the time but as I got older it got better, that is until I got pregnant with my daughter. It was no where near as bad as it was when I was little but I did feel sore and raw alot BUT I had her and her little brother completely natural with no problems at all! So I can say that LS shouldn’t cause labor to be difficult unless you have a severe case. My son is one and after I had it my LS started to get better again but the past few weeks wiping is hurting me again I’m tearing very easily and it sucks because I’m uncomfortable and feel bad for my husband because I can’t have sex right now. My doctor prescribed me some nystatin so I’m going to see if that helps and I hope it does! Well sorry for writing so much it’s just that this is the first time I have been able talk about and others will understand what I’m saying!

  18. Elle

    Hi, I’m 31 weeks pregnant and was diagnosed with LS when I was about 24, so about 18 years after it first started giving me severe problems, and 8 years after I tried to have a ‘normal’ sex life. It was accidentally discovered when I was seen by a specialist in the GUM clinic when I was expecting yet another misdiagnosis of what was wrong with me – I went home that day and spent an hour crying purely because I was finally being told I wasn’t imagining my condition!

    Anyway, I had a long chat with that same amazing doctor today about the implications of LS on my pregnancy/birthing and she was, as always, fantastic and reassuring. Here are some of her tips:

    - Dermovate (steroid cream) is fine to use in pregnancy as there’s such a very small amount that penetrates through the skin – LS is an external condition afterall.
    - Moisturise with cream like E45, Diprobase, or Cetrabane, once or twice a day to keep the area supple and prevent dryness
    - Give yourself perineal massage daily, esp in the last few weeks, using a pure oil such as virgin olive oil – she said this is fine to use, and the massage will help to stretch the skin in the area and so help prevent tearing if you are having/want a vaginal birth. I’m going to google how to do this, and she said there may be YouTube videos
    - Explain to the midwife delivering that you have LS, and that this means your skin is thinner and more brittle than usual – there’s a chance they won’t notice it in your notes
    - Tell the medical staff delivering that your LS has been biopsy and histology proven (if it has been!)
    - She said a bad tear is worse than an episiotomy, so it’s worth telling the midwife in charge that there needs to be a lower threshold for giving you one should the need arise – this is because of stitching and recovery afterwards
    - At the last stage of labour (which is the point she said when having LS is most likely to affect you) it’s better to take things a bit slower and not give a huge push to get the baby out – this is the bit that’s more likely to cause tearing
    -If possible, avoid a forceps delivery as this will be bad for tearing/LS

    I’ve avoided using my steroid cream until now as I didn’t trust the GPs who said it was fine to use, but my specialist consultant truly knows her stuff like no one else, so I’ll be using it now! But regards the birth she said it depends on the skill of the midwife, and what is necessary on the day, but there’s no reason LS should leave you in fear about your pregnancy or labour.

    I’ll try and report back after the birth! But good luck to everyone else going through this, and it’s nice to know I’m not alone.

  19. Louise

    Hi all, I’ve had LS for over 20 years (being diagnosed at 10, i’m now 30) My story is very different to a lot of the other ladies here but feel its important to know different cases and outcomes. I gave birth naturally in April 2011. I say naturally, but it was the most un-natural ‘natural’ birth. It was horrendous. I was advised by doctors that I could have a natural birth quite easy with just a small cut, episiotomy, but this wasn’t enough. After pushing what felt like forever they had to make a second cut, and then still also needed forceps. I was in active labour for 19 hours & was then told that if we still couldn’t get my baby out in the next set of pushes with the forceps I would be rusted for a caesarean. Luckily she finally came out. I was then stitched for a good hour whilst haemorrhaging. The main negative about opting for a c-section for me was the recovery, but i still had to stay in hospital with all the Caesarian ladies anyway, and my ‘natural birth’ left me not being able to walk, sit, do anything for weeks! I had to have milk baths, I couldn’t go to the toilet properly and I was ridiculously swollen below. It took forever to have sex again as it literally killed and I still now have a huge scar, which is not ideal when you already don’t have a ‘normal’ vagina. My advice is definitely opt for a c-section. I’m insisting on one next time, although I did enjoy the labour experience, but not enough to go through that again.

  20. Maureen

    Thanks Elle for your helpful tips. I am 29 weeks pregnant with no 2 and have severe LS diagnosed when i was about 6 years old. It was stable for many years and now in the last few years has flared up badly so much so that even intercourse is an issue. I had an emergency LSCS for my first child though nothing to do with LS. I would love to try for a normal birth with my second but my obstetrician feels that I need surgery to widen the vaginal opening as over the years the orifice has tightened considerably. I am in a dilemma whether i should go ahead with surgery and try for normal birth or else just have a planned LSCS. I am a doctor myself so am aware of all the complication but still cant make up my mind. Does anyone have a similar experience?

  21. Katie

    Hi
    I’m 31 and had my second baby 4.5months ago. I was diagnosed with LS about a year after having my daughter. It took a while to get a proper diagnosis, first doctor I saw told me to keep having sex and it would get easier. I firmly believe my LS was triggered by the mini pill as that was when I started getting symptoms.
    I breastfed my daughter while using steroid creams and was assured it would not be a problem as the amount of steroid absorbed into my system would not make it into my breast milk. It took about 6 months to get some semblance of a sex life back and we were lucky and conceived my son on the 2nd month trying. I found my LS symptoms reduced a lot during pregnancy, but I elected to have a c-section due partly to the LS, and partly due to other medical reasons.
    I’ve got my symptoms fairly well under control now and we’ve just started to try for baby #3, I’m terrified if we leave it too long, my LS may make sex completely impossible. It’s already causing us a lot of issues with my poor Husband being terrified of hurting me.
    I wish there was a good cure for this!

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