The site has potentiality for becoming quite large. WLSS would like you to be able to find the information you need. New items will be added from time to time. Many of the pages are still under construction.
The Basics page has information suitable for everyone who has lichen sclerosus and is particularly helpful for newly diagnosed men, women and children. There is a place at the end of this page for your comments and for sharing with others.
Men only is the page for the men to enjoy sharing with each other without having to feel lost in pages of posts relating to women. There is a place at the bottom of this page for you to make comments and share with others.
Lichen Sclerosus and Sex encourages you to share about your concerns and difficulties and welcomes the partners of those who are dealing with living with LS to share with us as well. It is acknowledged that for partners, living with LS can be stressful and distressing and confusing too.
Stem Cell Treatment Italy and USA page is for news and comments from patients who have had this treatment or are thinking about undergoing treatment. Comments can be left at the end of this page.
Forum for more private discussion can be found under the link for Forum.
Lichen Sclerosus and Pregnancy This new page launched on 6 December 2011 by popular request, for pregnant women with a diagnosis of LS. Please feel free to comment, ask questions, and please leave good news, many women give birth very normally and trouble free with LS.
Please comment below if you found this way of finding information helpful or not.
seems good to me……
Pete
Hi. I have been newly diagnosed with Lichen Sclerosis. I am a 46 year old mother of two children ages 10 & 11. Your site was my first in a search for support on this horrible disease. I have been prescribed 2.5 mg of Methotrexate. Three tabs week one, two, and three with blood work between. By week 6, I have an office appointment with my doctor. I’m curious to others who are taking Methotrexate and their success.
Thank you,
Tracy
I have been living w LS for more than 10 yrs it was only diagnosed 2yrs ago,Iam always in pain, itching, burning, stinging, depressed I have a great dermatologist but I cant stand living like this I cant enjoy my husband , and feel guilty about his pleasure I need support and do not know where to go!!!
Hi Denise, sorry to hear your conditions get you down so much. It is hard to live with sometimes. I hope your husband is able to support you through these difficult times. Its not easy, I know but when a few of us went to the first world conference on l.s. in Birmingham we were told of lots of ways to be more imaginative with our difficulties, sexual needs and those of our partners.
good luck
Pete