The British Society for the Study of Vulval Disease has a new list of vulva clinics on its website at www.bssvd.org for UK doctors who treat lichen sclerosus.
For doctors in the USA, contact the ISSVD (International Society for the Study of Vulvovaginal Disease) www.issvd.org
Did you find a doctor through these links? Please comment below.
WLSS is compiling a register of good doctors in the USA and if you have seen someone who has really helped you please share by emailing privately to WLSS on the ‘Contact Us’ link using the email form provided. Thank you.
My 66 year oldwife has an extremely advanced case of LS that is presently affecting more than 50 percent of her entire body. She presently has more itching and heat discomfort than she can bear. We are extremely in need of being pointed to some area in the world where real research and clinical trials may be being carried out. Any assistance would be much appreciated. We can provide more details if needed.
Arch Parsons
Is there a list of clinics or UK Doctors who can help with Lichen sclerosus which is on other areas other than the vulva as this isn’t the concern for my mum who suffers under her breast and has been diagnosed with LS for 2-3 years now and still nothing to help ease the discomfort.
Any help/suggestions would be amazing. Thanks P
I live in the U.S. and suffer from LS all over my breasts,torso, legs and arms. I too am waiting to find an ‘expert’ on treating LS in a region other than genital area.
ID LIKE TO FIND A GOOD DOCTOR IN VANCOUVER BRITISH COLUMBIA. ANYONE HEARD OF ANY….
No suggestions for Vancouver but have suggestions for doctors in other parts of Canada. If this is helpful, email me at admin@lichensclerosus.org
Hello
I’m a french girl, i have 23 years old and i suffered from lichen since one year. I have a lot of hurts in my “lips” but in the vagina. In the enter. It really hurts. I try to take “cortisone” Diprosone and with oestrogenes cremes “Colpotrophine”.!
It helps a little, in the think that it doesnt hurts when i want to sit down or walk. but in my personal life it doesn’t good at all, i can’t have sex because when i had it it breaks in a fissure in the midle of the “vagina lips”. i’m looking for help because in France any doctor can help me. I see 12 gynecologits in one year and “three dermatologists! Is there an operation to be better ? i am in trouble to loose my boyfriend and dont have a normal life one day, like may have chidren
Thanks a lot.
Hello. Yes, in the UK, we have operations that can help and there is a good dermatologist near Paris, who may be able to help you with more information – Micheline Moyal-Barracco
Department of Dermatology, Assistance Publique des Hôpitaux de Paris, Hospital Cochin, Paris Descartes University, Paris, France. There are lots of women in our LS Community, who have been able to have normal lives and to have babies. Your English is very good! I hope you will find this helpful.
Hello ,
I am new to this site and i hope I can find help as well as assist others.
I recently went private, to see a dermatologist although I could not afford it I was desperate.
I had no idea what I was suffering from in spite of seeing different doctors and nurses at the surgery, who told me that ‘many women suffer in this way,’ so join the club , seemed to be the answer.
I have had irritation and itching in the clitoral area for over five years. I have used numerous over the counter treatments which has probably aggravated the condition. I have been prescribed Dermovate and it has helped but I am now decreasing, as intructed, the application of Dermovate and it has started to irritate again. After reading the article on how much to apply I think that I may not have been using enough. I am seeing the dermatologist next month and hope and pray that I get better.
Lastly, am I wrong in feeling quite angry that I and obviously many others have got worse because of ignorance of the condition?