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Results of the British Association of Dermatologist’s survey on vulval disease, including lichen sclerosus.

Read here.

An Interview with Professor Hope Haefner

The interview is owned by the Association and Professor Haefner respectively. Please use this link to share the interview but do not publish anywhere without prior consent.
Read the interview here.

Dr Casabona

Dr Casabona, the originator of stem cell treatment for LS, has a new website. Please visit at www.francescocasabona.com
From 1st October 2015, Dr Casabona will move his work to Ospedale San Giuseppe , via San Vittore 12, Milano. Please contact him at francescocasabona@gmail.com

The O-Shot (PRP)

Invented by Dr Charles Runels in America, the O-Shot (PRP) helps to restore sensitivity in the vulva and vagina. Dr Runels found that the treatment helped women with lichen sclerosus. The O-Shot is now available in the UK at a clinic in London. Treatment is also available for men (P-Shot). The Association has many good testimonials from women in America who have found the O-shot beneficial for itch, increased sensitivity in intimacy and some even find it has helped their incontinence. As always explained, the Association is happy to inform you of new treatments but reminds you that you must seek advice from your own doctor and undertake any treatment at your own risk. Dr Runels has a book called ‘Activating the Female Orgasm’ it is not written for LS patients but helps to explain how the female orgasm is activated and how the O-Shot works. Read more here.

What is a Vulvateer?

A Vulvateer is the name given to any woman who is living with a vulval skin condition or anyone who is actively supporting the awareness programme to encourage better education and awareness for lichen sclerosus and vulval health. In time, the Association hopes that women will join the Vulvateers Action Group. This will be about starting a meeting and sharing community in your own town or city and taking part in the Vulvuary month. If you want to be more pro-active for LS, then become a Vulvateer and email Fabia to find out how. The Facebook page for Vulvateers and Vulvuary has now been disbanded.

Fundraising

I am very grateful to a Vulvateer who recently organized an evening of direct selling and donated the proceeds of her sales commission, plus money raised by a raffle to the Association for Lichen Sclerosus and Vulval Health.  It was a very happy evening with wonderful women and we all laughed a lot and had a good time. The women were happy to be educated about vulval health and the importance of vulval self-examination because most of them had never heard of vulval disease. They will take the message out into their world and share it with daughters, mothers, aunts, grandmothers, sisters and friends and in doing so, may save lives.  The evening raised just over £200. Wish there were more Vulvateers like this one.

Good News for Men?

The Association has been made aware of another treatment for LS, involving the use of PRP (Platelet Rich Plasma).  Currently, men in the UK are not able to receive the stem cell/fat transfer treatment via the NHS. A doctor in London is offering PRP treatment to men (and also to women) at a private clinic. If you are interested, please use the contact page to email for information and head your message ‘PRP treatment’.

New Book

Announcing the launch of a new book. From one sufferer to another.
How I took control of Lichen Sclerosus, and stopped it controlling me
A self-tested, self help solution.
By D A Lewis How I took control of Lichen Sclerosus, and stopped it controlling me
A self-tested, self help solution – from one sufferer to another.
By D A Lewis

Find help and support for Lichen Planus https://www.facebook.com/groups/LPsupportUK/

Read this article and find out why parents are advised against abandoning potent topical steroids.

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