Welcome

Lichen sclerosus is a chronic inflammatory skin disease. Mainly affecting the genital skin. It affects men, women and children at any age. It is known to be a progressive condition that relapses and remits. There is no cure. Progression may lead to loss of genital features. There is a small risk of genital cancer in men and women. The internet promotes a theory that it is an auto-immune disease, nobody has yet has been able to prove it. Whatever the cause, it manifests as a dermatological condition. Other factors may play a role. It was first identified in 1887. It is agreed that this is a frightening long term disorder and our aim is to help you with information and education to gain a good quality of life. This complex disorder has simple treatment with a high success rate in calming symptoms and delaying progression.

UPCOMING EVENTS
World Lichen Sclerosus Day JANUARY 17
https://www.facebook.com/groups/1435976346538018/
This link does not provide support and information. It is only for people who want ideas for raising awareness.

WE ARE ABOUT TO UPDATE THE SITE.  IF YOU DO NOT FIND WHAT YOU ARE LOOKING FOR PLEASE EMAIL US ON THE CONTACT FORM AND SUGGEST AN EDIT. PLEASE VISIT REGULARLY TO VIEW ANY UPDATES.

NEW ONLINE GROUPS RUN BY ALSVH as part of the World Awareness Day. Support, Information, Sharing about doctors and treatments.

Lichen Sclerosus Ireland and Northern Ireland

Lichen Sclerosus New York City and New York State

Lichen Sclerosus Canada

Vulval Health Awareness Month - Vulvuary - February

NEWLY DIAGNOSED
Lichen Sclerosus for Beginners
"I am new to this and I feel afraid."
New video - A woman's 25 year journey with Lichen Sclerosus
Scroll down to 4th video to view.
Help Doctors to help us by taking this survey
Do You Have VIN?
Would you like to join an online support group for VIN and vulval cancer? https://www.facebook.com/groups/245538888840656/
Visit the VIN page here - information and articles
This link is for those who have VIN/HSIL it does not support lichen sclerosus.  It does welcome those who have both LS and VIN but you must have a diagnosis of VIN to join.
PRP FOR MEN AND WOMEN in the UK and across the World
Page contains images of before and after treatment in men
VULVAL SELF-EXAMINATION LEAFLET
New - Read the Lichen Sclerosus Manifesto and Children's Charter
A Simple Method to Avoid Vulval Cancer

THE IDEA THAT SOME LIVES MATTER LESS IS THE ROOT OF ALL THAT IS WRONG IN THE WORLD Dr Paul Farmer, Medical Anthropologist

Aims and Objectives
To offer support and information based on medical research and published studies.
To make an awareness amongst family doctors and the general public.
To ensure sufficient awareness and education to facilitate a good outcome for the very young children who are being diagnosed now and who will have to grow up with LS. To make a future for them.
To encourage medical professionals to research the truth, whether or not using potent topical steroids does delay or prevent progression to vulva cancer. There is some anecdotal evidence to support the theory that using steroids may be a factor in avoiding vulva cancer.
Promote recent education and information.
Raise the profile for lichen sclerosus in men and male children.