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A Non Profit Organization for Over 20 Years

The Association for Lichen Sclerosus and Vulval Health. Supporting, educating and helping patients since1994. The World’s first advocacy organization for LS. Charity reference number EW10262.

NEW PAGE – BREAKING NEWS
Visit the Breaking News page for information about:
You may have missed the chance to meet an International expert for LS – are patient events a thing of the past now? Can we revive this event? Exclusive event limited to 25 to 30 places.
Good news for men with LS…New treatment now available in the UK
A new book written for sufferers by a sufferer
Why parents of children are advised not to stop steroid treatment
An inviation only forum for those undergoing or considering stem cell/fat transfer treatment in the UK
Find out how you can help to support an international patient event in Canada in 2015.

 

Current Challenges for People with LS and Vulval Health Issues

To make an awareness amongst family doctors and the general public.
To ensure sufficient awareness and education to facilitate a good outcome for the very young children who are being diagnosed now and who will have to grow up with LS. To make a future for them.
To encourage medical professionals to research the truth, whether or not using potent topical steroids does delay or prevent progression to vulva cancer. There is some anecdotal evidence to support the theory that using steroids may be a factor in avoiding vulva cancer.
Educate patients and doctors on the truth about steroids. Encourage good education and abolish the across the board statement that ‘steroids thin the skin’.
Raise the profile for lichen sclerosus in men and male children.

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