Lichen sclerosus is a chronic inflammatory skin disease. Mainly affecting the genital skin. It affects men, women and children at any age. It is known to be a progressive condition that relapses and remits. There is no cure. Progression may lead to loss of genital features. There is a small risk of genital cancer in men and women. The internet promotes a theory that it is an auto-immune disease, nobody has yet has been able to prove it. Whatever the cause, it manifests as a dermatological condition. Other factors may play a role. It was first identified in 1887. It is agreed that this is a frightening long term disorder and our aim is to help you with information and education to gain a good quality of life. This complex disorder has simple treatment with a high success rate in calming symptoms and delaying progression.
The Bristol (UK) get together meeting group has a new meeting on 15th February 2020. Please follow the link for further information.
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NEW ONLINE GROUPS RUN BY ALSVH as part of the World Awareness Day. Support, Information, Sharing about doctors and treatments.
Lichen Sclerosus for Beginners
"I am new to this and I feel afraid."
New video - A woman's 25 year journey with Lichen Sclerosus
Scroll down to 4th video to view.
Do You Have VIN?
Would you like to join an online support group for VIN and vulval cancer? https://www.facebook.com/groups/245538888840656/
Visit the VIN page here - information and articles
This link is for those who have VIN/HSIL it does not support lichen sclerosus. It does welcome those who have both LS and VIN but you must have a diagnosis of VIN to join.
PRP FOR MEN AND WOMEN in the UK and across the World
Page contains images of before and after treatment in men
From the Constitution document of the Association for Lichen Sclerosus and Vulval Health
Aims and Objectives: Patient Advocacy and Support/Education/Awareness
Promote issues pertaining to the health and wellbeing of those diagnosed with lichen sclerosus and will include other associated conditions, in particular, vulva cancer, penile cancer and VIN (Vulva Intra-Epithelial Neoplasia) and will aim to support irrespective of age, sex, ethnicity, ability, religion or political views.