MEN, WOMEN AND CHILDREN (BOYS AND GIRLS) CAN BE AFFECTED BY LICHEN SCLEROSUS and at any age. This is not purely ‘a woman’s condition’ or a post-menopausal condition.

This website is newly rebuilt (2011) and information is still added regularly.

8 December 2011 IMPORTANT NEW REPORT has recently been published by the Cochrance Skin Group
Read the report here.

To find information on lichen sclerosus and treatment, use the link to ‘The Basics’ under ‘how to use this site’.

In 1997, there was no information at all on the internet for lichen sclerosus.  Now there is an overload of medical publications, forums and patient anecdotes that make it a daunting task for newly diagnosed patients to take in.

SPECIAL REQUEST – This group is currently seeking an IT advisor and technical support person.  This post would need to be on a voluntary basis.  If you have LS or a relative with this condition and feel compassionate about the work of this group and feel you would like to help, please contact Fabia at admin@lichensclerosus.org
I do not need anyone to build or run this website but I do need help with technical issues.  (Fabia)

1 December 2011 – Special Announcement.  Currently experiencing a high demand for one to one support by email and therefore there is now a delay in replying to you.  Email replies and also replies from Admin on the varioius pages on the site, are subject to volunteer availability.  Every effort is made to give prompt replies but while the demand is high, prompt replies can not be guaranteed.

The aim is to give information and links that have come from reliable sources - both from the UK and from International resources.  The help and support of some of the world’s leading doctors who have knowledge and expertise in treating lichen sclerosus, have been requested to contribute and their help is gratefully acknowledged.