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A Non Profit Organistaion for Over 20 Years

The membership facility on this site has been suspended until further notice. The organization has received a request for funding help from a UK doctor who wishes to start a dedicated clinic for female paediatric care for LS. The long term studies that this clinic will undertake, will be of benefit to children and their parents all over the world. Please DONATE!

The Association for Lichen Sclerosus and Vulval Health. Supporting, educating and helping patients since1994. The World’s first advocacy organization for LS. Charity reference number EW10262.

Why is vulval self examination important with lichen sclerosus? Read this article and find out why parents are advised against abandoning potent topical steroids.

Current Challenges for People with LS and Vulval Health Issues

To make an awareness amongst family doctors and the general public.
To ensure sufficient awareness and education to facilitate a good outcome for the very young children who are being diagnosed now and who will have to grow up with LS. To make a future for them.
To encourage medical professionals to research the truth, whether or not using potent topical steroids does delay or prevent progression to vulva cancer. There is some anecdotal evidence to support the theory that using steroids may be a factor in avoiding vulva cancer.
Educate patients and doctors on the truth about steroids. Encourage good education and abolish the across the board statement that ‘steroids thin the skin’.
Raise the profile for lichen sclerosus in men and male children.

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