Emergency AppealThe Association laptop has died. Our funds stand at only £56. We are having to borrow a laptop to enable email replies to those who seek support. PLEASE consider making a donation to help us get a new laptop. We need around £1800.
Appeal launched 27 September has already received £40 in donations.
29 September, we now have £100.
3 October. One very generous donation of £50. We now have £150.
In August alone, there were 35,600 bonafide visitors to this site. Between 27 September and 4 October there were 14,341 visitors to the site. Only 6 people have donated.
Update. 13 October. 7 more people have donated bringing our total to £318. Still a long way to go!
It only needs 360 visitors to donate £5 each and we will be there.
Thank you to those who have contributed so far. Please keep it going.
THE IDEA THAT SOME LIVES MATTER LESS IS THE ROOT OF ALL THAT IS WRONG IN THE WORLD Dr Paul Farmer, Medical Anthropologist.
You can helpSomething you would like to suggest for this website? Write in using the Contact Us link.
Do You Have VIN?Check out a new Google community where you can make contact with others and have discussions. Follow the link and ask to join. You may wish to set up an alternative email address to protect your identity. https://plus.google.com/u/0/communities/112863741331784065635
New Study Shows Benefit of Using Topical SteroidsThe internet is responsible for misleading information about potent topical steroids to treat the symptoms of lichen sclerosus. Patients who have been badly advised by uneducated doctors are spreading fear messages. The new study from Australia shows one of the biggest benefits of steroid treatment and illustrates what a dedicated, well educated doctor can do to improve your quality of life. Read here.
Current Challenges for People with lichen sclerosusTo make an awareness amongst family doctors and the general public.
To ensure sufficient awareness and education to facilitate a good outcome for the very young children who are being diagnosed now and who will have to grow up with LS. To make a future for them.
To encourage medical professionals to research the truth, whether or not using potent topical steroids does delay or prevent progression to vulva cancer. There is some anecdotal evidence to support the theory that using steroids may be a factor in avoiding vulva cancer.
Educate patients and doctors on the truth about steroids. Encourage good education and abolish the across the board statement that ‘steroids thin the skin’.
Raise the profile for lichen sclerosus in men and male children.