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THE IDEA THAT SOME LIVES MATTER LESS IS THE ROOT OF ALL THAT IS WRONG IN THE WORLD Dr Paul Farmer, Medical Anthropologist

New Study Shows Benefit of Using Topical Steroids

The internet is responsible for misleading information about potent topical steroids to treat the symptoms of lichen sclerosus. Patients who have been badly advised by uneducated doctors are spreading fear messages. The new study from Australia shows one of the biggest benefits of steroid treatment and illustrates what a dedicated, well educated doctor can do to improve your quality of life. Read here.

IMPORTANT ANNOUNCEMENT – THE UNITED STATES OF AMERICA HAS A NATIONAL NON-PROFIT

The Association is pleased to announce a new non-profit for lichen sclerosus. Please visit www.ilsvh.org
The Association, based here in the UK and the ILSVH will be working closely together. Please support the Institute for Lichen Sclerosus and Vulval Health in the first research project they are undertaking, by donating generously via their website. It is essential that those with lichen sclerosus support research into any new treatments. The ILSVH website will be expanding to give further details of future initiatives, so do visit them regularly and please stay in touch with the Association too. Working together, we hope to move forward and relieve the suffering for everyone with lichen sclerosus.

Lichen Sclerosus Breaking News:

There have been no new items for this page since the end of 2015 but the page is still well worth reading. Click here to learn more.

 

Current Challenges for People with lichen sclerosus

To make an awareness amongst family doctors and the general public.
To ensure sufficient awareness and education to facilitate a good outcome for the very young children who are being diagnosed now and who will have to grow up with LS. To make a future for them.
To encourage medical professionals to research the truth, whether or not using potent topical steroids does delay or prevent progression to vulva cancer. There is some anecdotal evidence to support the theory that using steroids may be a factor in avoiding vulva cancer.
Educate patients and doctors on the truth about steroids. Encourage good education and abolish the across the board statement that ‘steroids thin the skin’.
Raise the profile for lichen sclerosus in men and male children.

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