A Non Profit Organization for Over 20 Years

The Association for Lichen Sclerosus and Vulval Health. Supporting, educating and helping patients since1994. The World’s first advocacy organization for LS. Charity reference number EW10262.

February is VULVUARY the Vulval Health Awareness Month

Future Events

A possibility arises for an LS Conference for those who wish to learn more about PRP (the O-Shot). Invitations will be for men as well as women. The Association would like to know how many would be interested in attending an event in London. Please use the contact page to register your interest.

Exclusive interview with Professor Hope Haefner.
Please visit the AWARENESS page and leave a reply.
Italian doctor, Dr Francesco Casabona has a new website and from 1 October 2015 will be moving his work to Milan.
Visit the Breaking News page for information about:
The O-Shot, pioneered in the USA by Dr Charles Runels, is PRP that can also help LS. Read on Breaking News page.
Good news for men with LS…New treatment now available in the UK
What is a Vulvateer?
A new book written for sufferers by a sufferer
Why parents of children are advised not to stop steroid treatment
A forum for those undergoing or considering stem cell/fat transfer or PRP  treatment in the UK is now in operation. Email to obtain and invitation.  Head your message ‘Forum’ please.
Do you have lichen planus as well as lichen sclerosus? Details of how to find support.


Current Challenges for People with LS and Vulval Health Issues

To make an awareness amongst family doctors and the general public.
To ensure sufficient awareness and education to facilitate a good outcome for the very young children who are being diagnosed now and who will have to grow up with LS. To make a future for them.
To encourage medical professionals to research the truth, whether or not using potent topical steroids does delay or prevent progression to vulva cancer. There is some anecdotal evidence to support the theory that using steroids may be a factor in avoiding vulva cancer.
Educate patients and doctors on the truth about steroids. Encourage good education and abolish the across the board statement that ‘steroids thin the skin’.
Raise the profile for lichen sclerosus in men and male children.