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A Non Profit Organization for Over 20 Years

The Association for Lichen Sclerosus and Vulval Health. Supporting, educating and helping patients since1994. The World’s first advocacy organization for LS. Charity reference number EW10262.

Do you have a child with lichen sclerosus? Are you concerned about the lack of good information for children? Are you an adult who went through childhood with LS and now have challenges that you would not want others to have to deal with? Would you like to work with the Association to try to make a better future for children? Do you even care that children as young as 2 years old, get this condition – for life? If you would like to help please email admin@lichensclerosus.org

Considering stem cell/fat transfer or PRP in the UK?  A new forum has been set up. Membership is by invitation only.  To apply email the administrator by using the contact form on this site.

Why is vulval self examination important with lichen sclerosus? Read this article and find out why parents are advised against abandoning potent topical steroids.

Current Challenges for People with LS and Vulval Health Issues

To make an awareness amongst family doctors and the general public.
To ensure sufficient awareness and education to facilitate a good outcome for the very young children who are being diagnosed now and who will have to grow up with LS. To make a future for them.
To encourage medical professionals to research the truth, whether or not using potent topical steroids does delay or prevent progression to vulva cancer. There is some anecdotal evidence to support the theory that using steroids may be a factor in avoiding vulva cancer.
Educate patients and doctors on the truth about steroids. Encourage good education and abolish the across the board statement that ‘steroids thin the skin’.
Raise the profile for lichen sclerosus in men and male children.

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