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Are you French? Spanish? Canadian? Australian? FEELING ALONE?

Would you like to be in contact with someone in your own Country? If you would be willing to be on a list of people who are happy to be contacted and share your email address, please get in touch, we will try to put you in touch with someone.

February is Vulvuary

Join us in the challenge for Awareness. ‘Fight for eVerywoman’ with the Vulval Health Awareness Campaign, the ‘eVerywoman’ campaign for the vulva.
 

Lichen Sclerosus Breaking News:

Results of the British Association of Dermatologist’s Survey about vulva disease, which included lichen sclerosus.
Exclusive interview with Professor Hope Haefner a leading expert in treating lichen sclerosus.
Italian doctor, Dr Francesco Casabona has a new website and from 1 October 2015 will be moving his work to Milan.
The O-Shot, pioneered in the USA by Dr Charles Runels, is PRP that can also help lichen sclerosus.
Good news for men with lichen sclerosus…New treatment now available in the UK
What is a Vulvateer?
Fundraising
A new book written for sufferers by a sufferer
Why parents of children are advised not to stop steroid treatment
A forum for those undergoing or considering stem cell/fat transfer or PRP  treatment in the UK is now in operation. Email to obtain and invitation.  Head your message ‘Forum’ please.
Do you have lichen planus as well as lichen sclerosus? Details of how to find support.

 

Current Challenges for People with lichen sclerosus

To make an awareness amongst family doctors and the general public.
To ensure sufficient awareness and education to facilitate a good outcome for the very young children who are being diagnosed now and who will have to grow up with LS. To make a future for them.
To encourage medical professionals to research the truth, whether or not using potent topical steroids does delay or prevent progression to vulva cancer. There is some anecdotal evidence to support the theory that using steroids may be a factor in avoiding vulva cancer.
Educate patients and doctors on the truth about steroids. Encourage good education and abolish the across the board statement that ‘steroids thin the skin’.
Raise the profile for lichen sclerosus in men and male children.

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