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Lichen sclerosus is a chronic inflammatory skin disease. Mainly affecting the genital skin. It affects men, women and children at any age. It is known to be a progressive condition that relapses and remits. There is no cure. Progression may lead to loss of genital features. There is a small risk of genital cancer in men and women. The internet promotes a theory that it is an auto-immune disease, nobody has yet has been able to prove it. It is not a sexual transmitted disease. You cannot pass it on to anyone. Whatever the cause, it manifests as a dermatological condition. Other factors may play a role. It was first identified in 1887. It is agreed that this is a frightening long term disorder and our aim is to help you with information and education to gain a good quality of life. A bereavement in 2018 robbed our founder of her beloved partner. Two years on, she is dating again, age 73 and still able to have sex. She wanted to share her experience to show you that this is a condition that can be overcome and you can still have a full and happy life. She went from losing a 30 year marriage due to this condition, to having successful, loving and sexual partnerships.

NEWLY DIAGNOSED
DATING WITH LS

GETTING IN TOUCH WITH OTHERS - ONLINE GROUPS - FACE TO FACE MEETINGS

WOMAN TALKS ABOUT LIVING WITH LS FOR  25 YEARS
Scroll down to 4th video to view.
VIN - Vulval Intraepithelial Neoplasia - known also as HSIL - Info and Support
PRP FOR MEN AND WOMEN in the UK OTHER COUNTRIES
Page contains images of before and after treatment in men
A Simple Method to Avoid Vulval Cancer

From the Constitution document of the Association for Lichen Sclerosus and Vulval Health

Aims and Objectives: Patient Advocacy and Support/Education/Awareness
Promote issues pertaining to the health and wellbeing of those diagnosed with lichen sclerosus and will include other associated conditions, in particular, vulva cancer, penile cancer and VIN (Vulva Intra-Epithelial Neoplasia) and will aim to support irrespective of age, sex, ethnicity, ability, religion or political views.

Message from our founder.: "A non-profit is usually obliged to only give information about conventional treatments and we do. We are asked for information about any new or latest treatments, even if they are not yet fully recognised. We do. Our founder is a patient and this non-profit is about support. Therefore, whether you use conventional treatments or something else, something that others may not approve of, we will support you. No judgement."