Women need to rely on vulva self-examination to recognise the early signs of cancer.
VULVUARY find out more on Facebook and also at www.vhac.org and @Vulvuary.
Announcing the winner of the Vulvuary Poster Competition. The winning poster was designed by Rebecca Smith, a 5th year medical student at Cardiff University, Wales, UK. The cheque was presented by Professor Alison Fiander a leader in research and treatment for VIN in the UK.
The Association for Lichen Sclerosus and Vulval Health. Supporting, educating and helping patients since1994. The World’s first advocacy organization for LS.
Why is vulval self examination important with lichen sclerosus? Read this article and find out why parents are advised against abandoning potent topical steroids.
Current ChallengesTo make an awareness amongst family doctors and the general public.
To ensure sufficient awareness and education to facilitate a good outcome for the very young children who are being diagnosed now and who will have to grow up with LS. To make a future for them.
To encourage medical professionals to research the truth, whether or not using potent topical steroids does delay or prevent progression to vulva cancer. There is some anecdotal evidence to support the theory that using steroids may be a factor in avoiding vulva cancer.
Educate patients and doctors on the truth about steroids. Encourage good education and abolish the across the board statement that ‘steroids thin the skin’.
Raise the profile for lichen sclerosus in men and male children.