Welcome

Lichen sclerosus is a chronic inflammatory skin disease. Mainly affecting the genital skin. It affects men, women and children at any age. It is known to be a progressive condition that relapses and remits. There is no cure. Progression may lead to loss of genital features. There is a small risk of genital cancer in men and women. The internet promotes a theory that it is an auto-immune disease, nobody has yet has been able to prove it. Whatever the cause, it manifests as a dermatological condition. Other factors may play a role. It was first identified in 1887. It is agreed that this is a frightening long term disorder and our aim is to help you with information and education to gain a good quality of life. This complex disorder has simple treatment with a high success rate in calming symptoms and delaying progression.

NEWLY DIAGNOSED
Lichen Sclerosus for Beginners

"I am new to this and I feel afraid."

2019 NEWS - THE ASSOCIATION FOR LICHEN SCLEROSUS AND VULVAL HEALTH IS 25 YEARS OLD

We celebrated in three ways.
By announcing a World Lichen Sclerosus Day, an Awareness Ribbon and opening a new website for the American Chapter of ALSVH.

February is VULVUARY

February 2019 is the 19th Vulval Health Awareness Month.
New awareness ribbon

Vulval Health Awareness Campaign - Vulval Cancer and VIN

CROCHET FLOWERS FOR VULVAL CANCER AND VIN. If you would like to take part please email vhac@lichensclerosus.org

Do You Have VIN?

Would you like to join an online support group for VIN and vulval cancer? https://www.facebook.com/groups/245538888840656/

PRP - IN THE UK FOR MEN AND WOMEN

This information is given under a legal disclaimer. It is offered to the many people who email to ask where they can find this treatment, while we are happy to share the names of doctors we believe to be of good reputation, we cannot accept any liability for any situation arising from your choice. We can share that the success rate is high for both men and women.
Dr Sherif Wakil
Dr Shirin Lakhani
You can also ask Dr Wakil about laser treatment.

 

New - Read the Lichen Sclerosus Manifesto and Children's Charter

and visit the new AWARENESS AND EDUCATION PAGE

A Simple Method to Avoid Vulval Cancer

THE IDEA THAT SOME LIVES MATTER LESS IS THE ROOT OF ALL THAT IS WRONG IN THE WORLD Dr Paul Farmer, Medical Anthropologist

Have your say about research
Access the link under the Information tab.

So many of you want to see more done but very few of you want to interact to bring about change. After all lichen sclerosus has been around since 1887 and if we do not get patient power, like other health conditions, we will leave a legacy of suffering for our children. Think of how the Breast Cancer Campaign and AIDS campaigns changed the way that people were helped. We work hard to support you, can you think about supporting us? Politics do matter.

New page dedicated to visitors from the USA
Access the under the Information tab.
Current Challenges for People with lichen sclerosus

To make an awareness amongst family doctors and the general public.
To ensure sufficient awareness and education to facilitate a good outcome for the very young children who are being diagnosed now and who will have to grow up with LS. To make a future for them.
To encourage medical professionals to research the truth, whether or not using potent topical steroids does delay or prevent progression to vulva cancer. There is some anecdotal evidence to support the theory that using steroids may be a factor in avoiding vulva cancer.
Educate patients and doctors on the truth about steroids. Encourage good education and abolish the across the board statement that 'steroids thin the skin'.
Raise the profile for lichen sclerosus in men and male children.