Welcome to the first support group in the world for lichen sclerosus. Supporting, educating and informing patients since before 1997, when this website was first published.
NEWS FOR PATIENTS IN THE UK Newly published Standards of Care for Vulval Conditions document. Read here.
There are two questionnaires/surveys to the right of this page. If you have clitoral problems, please complete the questionnaire as this is being used for research.
RADIO VULVA HEALTH
This broadcast will be of special interest to anyone living in or near Kansas USA.
BEWARE – There are some websites that now use videos or images of the Founder of WLSS in connection with creams and claims for things that cure LS. Please be aware that there has been no permission obtained in the use of these videos and that the only two products that are endorsed are the YES lubricants and the Femmax dilators – Video about the dilators.
To make an awareness amongst family doctors and the general public.
To ensure sufficient awareness and education to facilitate a good outcome for the very young children who are being diagnosed now and who will have to grow up with LS. To make a future for them.
To encourage medical professionals to research the truth, whether or not using potent topical steroids does delay or prevent progression to vulva cancer. There is some anecdotal evidence to support the theory that using steroids may be a factor in avoiding vulva cancer.
Educate patients and doctors on the truth about steroids. Encourage good education and abolish the across the board statement that ‘steroids thin the skin’.
Raise the profile for lichen sclerosus in men and male children.